Escorts

Note: This isn't quite finished. I doubt it will be "finished," ever. But I want to share it anyway, instead of fussing over each detail. The gist is here, and it's finished enough. It's a little bit too close for me to be completely objective. You'll understand when you read it.

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We all knew my mother's days were drawing to a close.

The nearness of death was palpable. There had been other times prior, when the end had seemed certain… And then she had rallied, strengthened, come back to us. This time, though, it was different. The labored breathing, which suddenly required supplemental oxygen; the blank expression, except when it became rapt and attentive—and that, oddly, when she was looking past us. I couldn't help noticing that her most alert moments, when she murmured unintelligible words with purpose, happened when she was not looking at anyone in the room. At those moments, my mother spoke to someone else.

In a period of about 36 hours, she had changed from a somewhat functional and responsive person to a gaunt ghost of the woman she had been. It was clear the cancer and dementia were teaming up to claim her; she would not be celebrating her 84th birthday in a few weeks.

The family was in and out, my father a constant, anxious presence. My oldest sister, Sarah, had been there the day before, and now was out of town. Others had stopped by, and had ended up outside on the patio, unable to ignore her worsening condition, her obvious increased stress when noise levels rose in the room where she lay. The caregivers had been working around the clock for the past couple of months as the situation deteriorated, and had borne the brunt of it, all with unflappable patience.

On Saturday evening, the day before her passing, discussion ensued about proper care for the overnight shift. The regular night nurse, Lin, had reservations about being alone. She'd seen this stage before, had witnessed the last hours of her other charges, and she knew the signs. The Hospice packet of heavy-duty meds lay waiting in the refrigerator, and had already been accessed several times... It would likely be needed again, and soon. Lin and Lottie conferenced quietly, then approached my dad to explain Lin's concern.

I listened to their conversation. I had been there through the day, and now was heading home to be with my young son; I knew I couldn't stay to support Lin on this night.

"I can stay with you," said the main nurse, Lottie; she also happened to be Lin's sister, and the very person who had recently enlisted her. 

"But you've been here all day," Lin argued.

"I'll be all right. It's typical at this point to have two people on duty," Lottie replied. This wasn't her first rodeo, she had reminded us many times as my mom got worse. Lottie knew the end-of-life signs even better than Lin, having made caring for others her life's work.

My father agreed to the double coverage without hesitation. At this point, all hands were needed on deck; we had stayed the course throughout the journey thus far, and there was no reason to falter now. We had entrusted these ladies with my mother's life, literally. She had been in very capable hands.

"I'll come back tomorrow, and stay tomorrow night. Okay?" I offered. "Tom is home tomorrow night, and that will work fine. Mark can be home with him while I'm here."

"All right, Alyssa. That will work," Lottie responded. The plan was laid.

I gathered my belongings, said my goodbyes, and stopped last at Mom's bedside. "'Bye, Mom—I'll see you tomorrow." There was no response, her eyes were mostly closed, so I kissed her on the cheek and headed out.

The drive home was uneventful, the roads fairly clear, unlike the fullness of my brain. Mostly, I prayed the same thing I'd been praying: Lord, please don't let her suffer. Lord, please take her before this gets any worse, please don't let her hang on and on when she is actually already gone from us. God had been so faithful already: there had been no pain in a situation where every doc told us to expect it. Lottie for over two years, and then also her sister—the wonderful women who had come to our aid were truly angels. The visiting Hospice nurse, the friends and family who'd brought food and laughter and distraction, the pastor who'd stopped to encourage so faithfully. Even my mother's last two weeks were blessed; she had told my father she was going to take a long journey, was going to see her family… and she was the last surviving member of her family. I think she knew, through the fog of dementia, what was happening. She was ready. So, so many answers to my prayers.

At home, I immediately sent messages to my sisters and a niece, reiterating the seriousness of the situation. The niece and her little girl had been there with me earlier in the day. She echoed my sentiments; the words "death bed" were aptly used.

Middle sister Anne was planning to go back on Monday, when kids would be back in school and she'd have a few hours free from playing taxi. "Anne—I don't think we have until Monday," I messaged back. Anne made a new plan, to visit the next day, Sunday. The evening slipped away quickly, my mind heavy.

And then it was Sunday morning, time for church, the hustle and bustle, hurrying to get there on time. We sang a praise song, and I remember feeling very peaceful, mentally rested, in spite of everything. Nothing had changed with Mom's condition—I had checked with my father earlier Sunday morning—but something had relaxed inside of me. I went home with my son, and we waited for my husband Tom to get home from his Sunday school class so I could head down with bag packed for an overnight stay.

And then, a text message. From sister Anne. They needed the Hospice nurse's private number, right now. I had left it on the refrigerator, but in the confusion of the previous day, had forgotten to mention that to anyone. I texted it to her quickly, and as I sent it on its way, it crossed paths with another note from Anne: "We think she may be gone."

Oh. My. There's a simple phrase that'll make your heart flop.

But I don't want to tell a story about my mother's passing. I want to tell a story about God's goodness. So here is where I skip ahead a bit. Of course I drove quickly down to stay as planned, thanking Jesus through tears for yet another answered prayer—a quick departure, and no lingering. As you probably have guessed, I did not see my mother alive again. We all gathered for the next three days, my father and sisters and I, and did what needed to be done. We spent a couple of days in a blur of grief diffused by a whirlwind of activity, of company, of throngs of people and hugs and tears and flowers and food and wine.

And somehow, we reached the burial day. A lovely day it was, weather-wise and otherwise. The churchyard where her body lies is situated on a hilltop, and I wondered, looking into that stunning blue sky, how much more beauty must surround my mother in Paradise. The pastor shared wonderful, hopeful words, honored her, buoyed our spirits. We held a casual luncheon with those who'd known her best, and shared a meal, but mostly we shared memories.

As we cleaned up afterward, and carried bowls and slow cookers back to vehicles, I had a moment to chat with Lin and Lottie, to thank them again for their selfless care of my mother. "We knew it was close," said Lin. "That's why I wanted Lottie to stay with me that last night. I knew. And then I saw those angels."

"What?" I asked. "What angels?"

"I saw three angels through the night. I sat facing the front door, and Lottie sat in the other chair next to the bed, and your dad lay on the couch when he wasn't sitting next to your mom… We were all trying to get some rest between checking on her… And I saw an angel in the front doorway, three times."

"What did it look like?" I asked.

"Just a bright outline of light. Just there in the doorway, three different times. And there were those voices, too."

"What?!?"

"Lottie and I both heard them, those last couple of days leading up to her passing. In the next room where the television is. I thought I was losing my mind until I mentioned them to Lottie, and then she said she'd heard them, too. Murmuring, they were, not words you could make out, just quiet talking. It wasn't scary or anything, and then the day and night before she passed, I heard them again, louder." Lin was very matter-of-fact about it.

"I'd heard them, too. You couldn't tell what they were saying, just the sound of voices, like they were having a conversation," Lottie chimed in, nodding.

I processed this for a minute. Was that who my mother had been talking with when she looked past me? And I haven't explained her last few hours on this earth, and I should. She was hanging on, stubbornly clinging to life. The pastor was called in, and then my sister Anne and her girls arrived. My mother was in her favorite place, her home; she was surrounded by love, her husband by her side; she had a chance to say goodbye to all of her close family. The pastor and a granddaughter sang to her, and she took her last breath.

She hadn't lasted more than an hour after Anne's arrival. I suspect that's what she was waiting for, to see and hear each of us. I like to think that's what she was murmuring about, with those angels, maybe with Jesus himself—arranging her departure, every detail, just the way she wanted it. She was attended by earthly and heavenly angels, and music. She said her goodbyes, and then she was escorted to the Next Place.

It was as good an end as it could have been. I think about it, and am amazed again and again. How good He was to her, to us. I am thankful. My faith is strengthened and confirmed. We are loved more than we could imagine; we need only receive, accept, be grateful. And tell people, too. My mother's story becomes my story to share, so that others can see the lovingkindness of God even in terrible trials.

I hope for a heavenly escort myself, someday. Music and blue skies? That would be icing on the cake.

Putting it out there so I don't have to talk about it

So, my mom is dying.

I don't mean to be blunt. It is my nature, but I suppose some of you will find it offensive, even cold. I guess it's just the way I deal with what's happening. In general, I don't do sentiment very well, nor very often. It takes too long, makes a bad thing worse to me, and puffs my eyes until I'm unrecognizable. No, thank you.

Anyway, my mother has been dying for a while now. And yes, I realize that we're all dying; out of 1,000 people here on Earth, 1,000 of them will die. The odds are sort of stacked against us.

But my mom is dying in a slow, observable way. And it's been pretty damned difficult to watch.

Dementia is bad enough. Dementia combined with ill health is worse. Dementia plus general poor health plus the ticking time bomb of cancer? That, my friends, is the trifecta no one wants to hit. It happens, daily, probably to more folks around you than you realize. Once you become one those folks, then you begin to grasp how common this type of situation is. But you wish you didn't know, and you wouldn't wish it on anyone else.

As her memory faded, she began to fail physically as well. We all noticed, pushed the memory meds (which I suspect do nothing), and saw the general deterioration become a bit pronounced. And then a bit more. A urinary tract infection caused the first landslide, and we all saw the woman we know retreat into herself and become, temporarily, an unhappy and uncooperative person who wanted only her husband and to be left alone. A short stay in a rehab facility to help her regain strength was a necessary but difficult period of time; she was not a model patient. Finally, the infection cleared and she returned to us, somewhat less muddled but permanently affected.

That was 2 1/2 years ago. Since then, there have been more infections, falls, scans, biopsies, the deadly diagnosis of the "C" word, and a continuing decline. Help has been enlisted, then compounded. Some friends and family have been amazingly, touchingly supportive. Seeing this good in people, and spending time around the biggest helpers, have been humbling moments for me; I am a better person simply for proximity to these kind-hearted blessings in human form.

But the kindnesses and offerings and visits have not stopped the progression of the decline. Only God can do that, and I have to believe He has His reasons for permitting this. My heart has been softened considerably; never again will I be able to see a family dealing with a health crisis and not remember these days. I will certainly be slower to judge anyone facing terminal health problems; I will try to never take for granted my basic faculties and abilities. These are good ends, because I should never judge, and I should always be thankful. I wish there were easier means to acquire such wisdom.

She was never my best friend—we didn't have that kind of relationship. I was the third of three girls; I imagine that both of my parents were weary by then from the drama of all those female hormones. I didn't tell her my secrets, or give her every detail of my crushes at the high school dance. In the end, though, none of that matters. She is my mother, who protected me and bathed me and sat through my band concerts and made me do chores and helped me pick out clothes (until I was a teenager, at least). Her blood runs in my veins. I am here because of her, and thanks to her.

It feels now as if we are caring for a shell of the person we knew. Is she still in there somewhere? Does she remember bits and pieces, or is it mostly just gone? Sometimes she remembers me, but mostly she just knows that I am familiar. That's what she craves: the familiar. She is moving away from me, from us. I know we must be nearing the end because she has ceased to brag about her childhood singing voice; it has been months since she's told me that she was the smartest in her family, in her class even. Now she has begun to turn down sweets. My mother! Refusing a cookie! Not finishing a piece of cake. She used to declare how she loved to read—and she did, much more than housework!—and even though she hasn't read anything since this long, ugly journey began, it pains me that she doesn't even mention it anymore.

The person we knew is already gone, really. It's as if I'm watching a cheesy episode of Star Trek, where the crew members step onto those round platforms and disappear a little at a time (cue the shimmery, space-age sound effect). That is what's happening to my mom. She is getting more and more faint, even as I physically help her rise from her chair, even as we have to stand closer to each other than ever before so I can assist her with delicate matters in a way that the woman I used to know would never have permitted... Even then, she continues to vanish. She is disappearing right before my eyes.

I pray for her quick departure, that it is easy and light. Recently after waking, she announced to one of the wonderful ladies who help care for her, "Jesus loves me." Yes, He does. I trust He is preparing the arrival party.

Spewings of a discouraged, uptight visionary

There was an old eighties song with this refrain: "What are words for when no one listens anymore?" (Remember that song, that band, the singer with her trademark breathy, squeaky style? You do? Then you, too, are old.) But the song stuck with me, and I keep singing it to myself lately. More true, it is, every day. (Now I'm being Yoda.)

When I was young, I loved words. I loved to read, to write, to journal, to gab for hours and hours on the telephone. Words were magical, a sanctuary for me, a means of achieving change and growth, of acquiring new relationships and knowledge. Back then, I put a lot of stock in words.

Years passed, and I began teaching school. I honestly became aggravated by my own voice; perhaps every teacher does at times. And then there was grad school, where words themselves started to become tiresome. Often, nothing new was being said, it was only being expressed in a different way. I wasn't quite as enamored of words; I stopped short before finishing the Master's. I just didn't want more words in my world.

I switched careers, and technical writing and editing fit better, because it encouraged a more terse, to-the-point style of writing. Fewer words seemed like a good idea; being taciturn was downright appealing to me.

Words took center stage once again when I had my baby. Watching a child learn to understand language, then try to speak for himself, is fascinating. I grew tired of the sound of my endless voice, explaining, conversing, reading aloud, but it paid off. Thankfully, my son speaks and reads well.

But now? It seems I release my words into the wind, where they soar away, unheard, resented, ignored. My words have become traps, because what I say can and will be used against me. The words I employ are almost always displeasing to others, because they involve responsibility, work, jobs, schedules and timetables, commitments no one wants to keep. I am the lone Type A, and therefore I am the regular bearer of bad news.

I was recently accused by my partner; he informed me that I love telling people what to do. Truly, I do not. I am a reluctant leader. On personality tests, I always score high in leadership yet low in soft edges and relational skills, and I know that about myself: I'm effective but often insensitive when in charge. I don't enjoy leading, just like I didn't enjoy teaching; since I know I can be a cruel leader, I am guilt-stricken the entire time I'm doing it. Am I being too black-and-white? Do those I'm leading find me callous? Will I achieve anything other than hurt feelings? Usually, I end up leading only because there is a lack of leadership and an abundance of indecision, which I can't stand. Sometimes others are willing but not able—or the others who want to lead would clearly wreak havoc for various reasons.

I tried to defend myself, to explain to the accuser that I don't enjoy telling people what to do. I don't. But someone has to do it. To make matters worse, I told him, I am skilled not only at seeing inefficiencies, but also in foreseeing danger and mishaps and the like. I imagine the near future, and all sorts of avoidable but probable events leap out with crisp clarity. I want to help people get work done faster, reach their destination sooner, avoid any silly foibles. I want to help them steer clear of painful consequences, of injuries and unfortunate occurrences. And a lot of times, I am right; the things I foresee with concern pan out just as I'd feared. I hate it. There's no joy in being right about that stuff, just as there's no joy in leading when you know you're likely leaving a wake of bitterness.

I ponder the rest of my life, and I feel laden with the burden of silence. In all human situations where I'm involved at more than a surface level, I will be required to either bite my tongue or annoy people. Always. And how can I bite my tongue every time? Work still needs to be done, projects still need to be completed, meals need making, shopping must happen, laundry and tasks and cards and gifts and homework checks and appointments... how to accomplish it all without speech? Must I be the responsible, nagging wife and mom for all my days? And there's anxiety in being that one who supposedly "loves telling people what to do": I fear for my son and husband if I die. I ask my friends, Please, check in on them. Make sure they don't become hoarders, make sure the kid still goes to school, eats something other than pizza.

Would a big chalkboard work? A daily agenda that is written and need not be spoken? Doubtful. I fear it would go unseen, as do the jobs, assignments, timely meals, household messes, grass un-mown... It would likely be one more thing to go unnoticed by them, and yet one more item on my to-do list ("#47-update daily agenda"). I am weary, so weary.

I wish I would remember that no one is listening, and that more importantly, people learn best by doing... even if that do-ing involves falling flat on one's face. I wish I could remember to pray more and talk less,. And I really wish I were a mature enough Christian to say that I find as much satisfaction in God's working things out instead of me warning, reminding, carping, and then saying, "I told you so." No one likes hearing that.

Alas, I am not that big a person—yet.

I'm a small man in some ways, Bart. A small, petty man.
-Principal Skinner from The Simpsons